|Posted by isabellasbigdreams on March 9, 2015 at 1:50 PM||comments (0)|
Isabella took part again in the Pembrokeshire regional schools disability gymnastics championship in Fishguard last week (Wednesday 4th March 2015)
All the schools that took part did well.
Isabella did so well getting 1st in all her routines she took part in and then overall 1st in her catagory. Such a proud moment :-)
I am taking her to take part in the finals in Cardiff next week as the school isn't going.
As long as she takes part doingher best i'm very happy.
Pics from last weeks championship are in the photos page http://members.webs.com/MembersB/editAppPage.jsp?app=photos&pageID=274250259
|Posted by isabellasbigdreams on February 15, 2015 at 9:10 AM||comments (1)|
Finally after a year and a half of waiting we have finally taken delivery of Izzy's new trike from Tomcat. She was so excited to have it delivered just in time for Christmas last year and now can enjoy some independence of her own :-)
|Posted by isabellasbigdreams on October 22, 2014 at 10:40 AM||comments (1)|
Once again we went to the Child Growth convention in Northampton, and had a wonderful time, meeting new and old friends.
Tom entertained us in the evening with his wondeful singing and also we had lots of fun in the photo booth..Izzy even got married!
Photos are here:
|Posted by isabellasbigdreams on September 1, 2014 at 5:30 PM||comments (1)|
I had a wonderful chat with a journalist a few weeks ago who really was interested to know more about Russell Silver Syndrome and Isabella.
He took some details and then went off to write a story to hopefully have published, not only to raise awareness of Russell Silver Syndrome but also to highlight how a small person can be happy, Isabella makes so many people smile on a daily basis. She is such a joy.
I hope everyone enjoys reading her story and that it raises more awareness of RSS and also directs more families with growth issues to the Child Growth Foundation who have helped me immensly.
|Posted by isabellasbigdreams on June 9, 2014 at 9:45 AM||comments (1)|
Well the school decided not to travel to Cardiff for the finals of the disability gym competition, so I took her myself,
she had both myself and her gym teacher helping her during the routines.
It was a very tiring day but Izzy did her best on the routines and came 3rd on her bench routine she was very happy!!Looking forward to next year now and being graded in the proper group too!Pictures are in the photo page.
|Posted by isabellasbigdreams on March 21, 2014 at 9:35 AM||comments (0)|
Firstly I would like to add that I absolutely HATE heights...EEK! But...
I am doing this skydive to raise money for two charities very close to my heart,
The first being the Child Growth Foundation UK who without their support, knowledge and research they do, Isabella would still be undiagnosed now.
It was through the CGF that I found support and information leading to a specialist in London who specialises in a very rare form of primordial dwarfism called Russell Silver Syndrome.
This is such a rare syndrome that my daughter has, that she is one of only 2 known children in Wales, UK that have RSS.
Without the CGF and the specialist I wouldn't have the support Isabella needs.
The CGF rely on fundraising to continue the work and research they do, so I am hoping people will join me and help me fundraise for this wonderful organisation.
They support not only RSS but other syndromes too, and host an annual convention where they have specialists who come and give advice, talks/workshops and answer any questions parents have.
It is also a wonderful time to meet with other parents who have children with the same syndrome as yours,
Isabella loves meeting other children who are small like her.
More information on the convention and all the CGF do is on their website.
UNIQUE is the leading charity providing specialist information and support to families coming to terms with a diagnosis and the medical professionals caring for them.
New technology means many more children than ever before are being diagnosed.
In the last year alone more than 1,000 parents approached us for help, straining our limited resources.
Without the donations and brilliant fundraising efforts of their members, supporters and friends,
they simply couldn’t go on providing our services to help anyone born with a rare chromosome disorder.
so your help is gratefully appreciated.
Please take a look at their website:
|Posted by isabellasbigdreams on March 21, 2014 at 9:30 AM||comments (1)|
Have just come back from having Isabella weighed and measured for the 1st time since starting growth hormone exactly 13 months ago,
she has grown 10cm and nearly 2kg! from 89.9cm on 18th Feb 13 to 99.6cm on 18th March 2014 and 13.3kg to 15kgs.
Very happy am now needing to buy new trousers as the legs are getting shorter.
Will be the 1st time since 2009 that she's had new trousers!
|Posted by isabellasbigdreams on March 21, 2014 at 9:30 AM||comments (0)|
Izzy was in her schools disability gym competition (regional) on the 11th March 2014 where she came 2nd in her categories and 2nd overall!
Now off to Cardiff for the regional finals.
One very proud mum! she has come so far in a year.
Pictures are in the photo gallery!
|Posted by isabellasbigdreams on January 21, 2014 at 5:15 AM||comments (1)|
Ok provisional date for the skydive is the 21st June, makes it more real now, Eek!!
Anyone who would like to join me on the jump please get in touch!!
I will set the online sponsorship as soon as the dates are confirmed and sponsor forms will also be available too, if anyone would like one please get in touch
|Posted by isabellasbigdreams on January 21, 2014 at 5:15 AM||comments (0)|
I (Isabella's mum) am hoping to do a skydive this year eek!!
I hate heights & planes but am wanting to do it as I know the experience is one of a lifetime.
I will be fundraising for the Child Growth Foundation UK & Unique charities to help them continue with the wonderful work they do...
I will have separate fundraising pages for both charities once I have set my date for the skydive & will put links here...
Anyone who wishes to join me let me know, but your support would mean everything to myself & the charities concerned.
Thank you x